Tuesday, February 26, 2013

We had good news today. Leah's CMV and EBV virus came back negative. We were very happy to hear this. They are also continuing to cut more of her medications. She is still on a lot, but it has gotten much better over the last week. We are being told that we might be able to head home this coming Monday after clinic. Yea!! We will probably find out on Thursday if that is the plan. This coming Tuesday will be 7 weeks that Leah and I have been out here. I think we are both ready to be back home. Travis continues to travel back and forth. He works for 3 days, then travels out on Thursdays. This week, Ethan is staying with me and it has been going well. Leah enjoys having her older brother here to play with. She is doing really well with eating and doesn't seem to mind textures. We are still working on her transitioning to regular milk, but she is slowing getting used to the taste. We are very happy with how the last couple of weeks have gone. Thanks to everyone for your continued prayers and support.

Friday, February 22, 2013

Leah continues to do well. Her liver numbers look really good. She had another clinic appointment on Thursday and had more of her staples and stitches removed. I think she will have the rest removed on Monday. No word yet on how long we will be out here yet. We are hoping just another week or 2. We are grateful to continue to see more of her personality come out since we've been out of the hospital. One thing they are still keeping an eye on is CMV and EBV. She is at a little bit of a higher risk to get one of these because her donor was positive and she was negative. So far, it has not been detected. Monday they will do another test to see where she's at. If she would be positive for either one of these, it could mean a longer stay for us. Thank you all for your continue prayer, support and interest in Leah's story.

Monday, February 18, 2013

We are enjoying being at Ronald McDonald house. We had a very good weekend and even had our first outing to Target to get a few things. We also had some visitors here on Friday and Saturday. Thanks for taking out time to stop in. It's always nice to see some familiar faces. Leah had her first clinic appointment today. She didn't even cry when they had to prick her twice to get blood work. Everything continues to look good. We have another appointment on Thursday and they will probably take out the rest of her stitches and staples.

Thursday, February 14, 2013

We are together again as a family in our temporary housing. Leah was released from the hospital today. We praise God for how far she has come in just a weeks time. We will be here for a couple of weeks yet. We have clinic appointments every Monday and Thursday to see how Leah's liver numbers are holding up. We have quite a few meds that she also has to take throughout the day but this will only last a few months. I never thought I would know the name of so many meds. Happy Valentines Day

Monday, February 11, 2013

Leah continues to get stronger. Travis and Ethan headed home on Sunday, and Travis's parents are here to help out for a couple of days. The nurses are starting to teach me how to do all the medications that Leah will be on when we leave the hospital. I also have a couple of teaching sessions on what all the meds. are for. They are looking at possibly releasing us from the hospital sometime this week. We will then be living at Ronald McDonald house for a couple of weeks and doing different appointments throughout the day. I wasn't expecting to hear that we might be leaving the hospital this week, but we are excited about the possibility. Leah still isn't eating a whole lot, but we know that will get better eventually. We can usually get her to smile pretty easily, which I love to see. We praise God for how far she has come in just a weeks time.

Saturday, February 9, 2013

It's been a long 3 1/2 weeks but we finally got to see some of Leah's fun loving personality come back. Matt & Shelby came out to visit and Leah was even smiling for Matt. She also ate breakfast and supper on her own(without us practically forcing it into her mouth). And for the first time ever, chocolate cake with peanut butter icing. Please pray that she would continue to get better, and for her eating and drinking. Thank you all. Neither this girl nor her parents sinned, but this happened so that the work of God might be displayed in her life. John 9:3 *paraphrased